About us

The platform was founded in October 2016 and unites all actors of Italian Switzerland that are active in the field of rare diseases. As Co-Presidents the following persons were designated: Dr. med. Fabrizio Barazzoni (Ente Ospedaliero Cantonale), Prof. Dr. med. Stefanos Demertzis (Fondazione Cardiocentro Ticino) and Dr. phil. Claudio Del Don (Associazione malattie genetiche rare Svizzera italiana).

Members of the platform